Newly Diagnosed
You don't have to navigate this alone
Receiving a congenital heart disease diagnosis can make it feel like the world has stopped.
Whether you just learned your baby has CHD during pregnancy or you've recently welcomed your child into the world, this is likely one of the hardest seasons you've ever faced.
There is so much information, so many decisions, and so many emotions all at once.
At Linked by Love, we believe no family should have to navigate those first days alone.
What You May Be Feeling
• Shock
• Fear of the unknown
• Grief for the future you imagined
• Confusion from medical terminology
• Anxiety about delivery or surgery
• Isolation
• Hope mixed with overwhelming uncertainty
Every one of these feelings is valid.
You are not alone.
"I thought I needed answers. What I really needed was someone to tell me I wasn't crazy for feeling everything all at once."
— Heart Mom
There is no "right" way to react to a diagnosis.
Some parents want every answer immediately.
Others feel frozen.
Many experience both hope and heartbreak at the same time.
Whatever you're feeling today is valid.
You Don't Have to Figure This Out Alone
One of the hardest parts of a diagnosis isn't simply finding information—it's knowing which information actually matters right now.
Families often spend hours searching online, joining Facebook groups, reading medical articles, and trying to piece everything together on their own.
We've done much of that work for you.
Linked by Love helps families find trusted resources, meaningful connections, and nonprofit organizations based on where they are in their journey—so you can spend less time searching and more time caring for yourself and your family.
How We Support Families
Ways We Can Support Your Family
Life after diagnosis can feel overwhelming, but you don't have to navigate it by yourself. Whether you need someone to talk to, a community that understands, or guidance through the next steps, we're here to walk beside you.
Find Your Person
Not everyone is ready for a group. Sometimes you just need one person who truly understands.
We'll thoughtfully match you with another heart parent who's walked a similar journey — someone who's been there, gets it, and can walk beside you through this phase of the journey and beyond.
Request a Parent MentorFind Your People
There are very few places where you don't have to explain yourself.
Our weekly virtual parent meetups are a place to connect with families who simply get it.
Come as you are. Stay as long as you can. We'll save you a seat.
See Upcoming MeetupsPersonalized Guidance
You shouldn't have to spend hours searching for answers.
As we get to know your family, we'll help connect you with trusted resources, nonprofit partners, and support that fits where you are in your child's journey.
🤍 Connect With Our TeamPodcast
Honest conversations with parents, healthcare professionals, and nonprofit leaders sharing encouragement, stories, and practical guidance for every stage of the CHD journey.
Coming SoonA Place to Exhale
Whether you have five minutes or an hour, our wellness experiences are designed to help you pause, breathe, and reconnect with yourself.
Because caring for yourself is part of caring for the people you love most.
Coming SoonYou Don't Have To Know Everything Today
Today's job is simply to take the next step. We'll help you with the one after that.
Complete the form, and a member of our team will reach out soon.